Internet research tips

(Updated October 22, 2020.) I first started my self-experiments with nutritional therapy two decades ago, when internet searches for “XYZ deficiency symptoms” landed me on sites featuring iguanas, Yorkshire terriers, cockatiels, and, on one auspicious day, a Colin Farrell sex tape. At the time, I was amused that veterinarians, ornithologists and herpetologists had put more effort into researching the effects of vitamin and mineral deficiencies on their patients than human doctors had.

Unfortunately, researching alternative health treatments still involves wading through a lot of crap. Here are some guidelines to keep in mind. If you have other suggestions, let me know.

Learn about your filter bubble

These TED talks cover the topic, which had its heyday about 10 years ago. The browser Duck Duck Go also offers tips on how to minimize tracking. And for the love of all that is holy, never, ever, ever click on a Livestrong link (more below). The more you click on content farm links in search results, the more such links you’ll get for your next search.

Try these search terms

replete, repletion, deplete, depletion, inhibits absorption of, competes with, hinders uptake of, orthomolecular, nutrition therapy, antagonist, side effects

Avoid content farms like the plague

I write this from years of experience. Content farms are peddlers of mediocrity that employ writers to produce “articles” designed to answer internet search queries in order to generate high search engine results and thus enable them to charge more for ads. This is the only explanation for the existence of an article titled “Is ALS caused by zinc supplements?” Theoretically, Google has declared war on these “low-quality” site but I still spot them occasionally.

The writers are often so mismatched to their assignment that they might very well have done the exact same search you’re doing to create the article you’re reading. Their output is sketchy, vague, extremely conservative, and often just flat-out wrong. I’ve seen vitamin B6 (pyridoxine) referred to as folic acid and micrograms confused with milligrams (a very big error, dosage-wise). One writer suggested a dose of 220 mgs of zinc a day when they were obviously referring to 22 mgs of zinc, a standard dose used by one of the largest brands. Okay, that last one might be a typo, but how many people would know that? Even I, who have achieved a Keith Richards-like tolerance to zinc megadoses, would balk at that amount.

Another tip-off that an article is from a content farm is the appearance of the same phrases on more than one site. I believe many so-called medical sites simply rent the same info database and just change the display design from site to site.

If you do find content farm info that seems to confirm a connection or theory that would be of great help to you — manganese toxicity and vampirism, let’s say — don’t act on it until you’ve found more evidence on another, more respected site.

A short list of content farms:

    • Livestrong
    • eHow
    • Yahoo Answers
    • …never mind, use

this guy’s list of content farms

Then again, I remember about.com’s thyroid section, thyroid.about.com, being perfectly reliable and useful when I was researching hypothyroid.

Don’t avoid a site just because it’s about a condition you don’t have

Autism, ADD, thyroid, etc. practitioners/sufferers/parents have often done a great deal of research on how nutrients affect the body. They are also very experienced in looking for answers outside of conventional medicine.

In general, countries with socialized medicine trump countries with industry-funded medicine

Searches used to take me to Brit, Aussie, New Zealand, and Indian sites a lot more than they do now. Do give those a look. But watch out for the Indian content farms, which are even more egregious than ours, although their English is more amusing.

Personal accounts are great

Accounts of individuals’ experiences and research can be very valuable. It takes some doing to find them, but there are articulate people on this path whose personal experiments (and adherence to some semblance of the scientific method) have brought them useful insight and knowledge.

Here’s a quote about anecdotal info from one of my favorite bloggers, Monica Cassani at Everything Matters (formerly Beyond Meds). She’s actually talking about withdrawal from psychiatric drugs, but the statement applies to nutritional therapy, too.

“I’ve found, for better or worse, that it’s the organized patients online that know the most about withdrawal and will be the most cautious and give the best advice, though it too is sometimes flawed. Everyone is subject to their own particular dogmas since we are dealing in a world of anecdotes that lacks systemic study. That said, doctors have even less anecdotal experience because they simply have not dealt with the sheer volume of people that we who frequent these underground internet worlds have. I say this both as a person who has had to struggle to get good information and as a professional.”

Sandy Simmons’ Connective Tissue Disorder was one of the first personal sites I found. It contains a ton of info she accumulated during her investigations of her family’s health problems. It has helped me on several occasions and inspired me to foist this opus upon the world.

Search and/or join online discussion or support groups

I’ve joined more than a dozen over the years — celiac, iodine, B12, pyroluria, heavy metal poisoning, and mold — as I investigated each topic. The info I found there was much better than I could find on my own. I’ve found though that the moderator can make or break a group. Do not bother with groups that allow bullying or insults. Nothing is worth that shit. With the increased anxiety about personal info being mined from these social media platforms, even in hidden or private groups, and especially on Facebook, more participants are looking to move to password-protected discussion platforms.

2 thoughts on “Internet research tips

  • Karen

    Your the first person I have come across after years of research that gets migraines from similar things like copper, vitamin d and L glutamine . I also get them from valerian, indole 3 carbinol , tryptophan , gaba the list goes on. I would love for you to expand on this issue. Have you decreased your migraines now from taking b12 and b6 in that specific form you talk about? My migraines are debilitating and I am starting to think that it has alot to do with methylation . Anything you can expand on would be greatly appreciated.

    • Marjorie

      Interesting — another commenter suggested that my problems with amino acids might be due to methylation issues. I had the MTFHR genetic test done and indeed I am a very poor methylator. I started the basic methylation protocol (I think it was on mthfr.net) a few months ago — methylfolate, every four hours. I had positive results for two weeks, then that horrific headache started, but apparently it’s very common with poor MTHFRers. I followed mthfr.net’s suggestion and took 100 mg niacin a day, and now have no headaches with the methylfolate. Actually the “experts” say 50 mg will do it, but I couldn’t find that small a dose.

      Last year P5P eventually started to give me headaches, which was annoying because it solves a lot of problems for me, including concentration and sinus issues. I haven’t re-tested it or the other headache-inducing substances since starting the methylfolate+niacin.

      I’m afraid I can’t actually remember to what extent taking methylated B6 (P5P) and B12 helped with the vitamin D/5HTP-induced headaches. I think it just took a little longer for the headaches to start, but don’t quote me.

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